Data Policies

ANZDATA is committed to acting in accordance with Australian and New Zealand national privacy principles, and is open and transparent about the collection, management and usage of information. Over the course of 2017, the ANZDATA Registry embarked on a review of policies and procedures regarding data collection and utilisation to ensure our practice meets contemporary standards.

Ethics approval was also sought and obtained from the Royal Adelaide Hospital Human Research Ethics Committee (reference number: HREC/17/RAH/408R20170927, approval date: 29/11/2027). In particular, specific approval for the use of “opt out” consent provisions was obtained. The approval letter is available on request (in particular for submission for local ethics/SSA processes where required).

Data policies and procedures are available from the links below:-

2.1 Data Collection Policy

2.1Data_collection_policy_v2019.1.pdf
2.2 Data Custodianship and Release Policy

2.2Data_custodianship_and_release_policy_v2019.1.pdf
2.3 Data Request Procedure

2.3Data_request_procedure_v2019.2.pdf
2.4 Quality Assurance Procedure

2.4Quality_assurance_procedure_v2017.1.pdf
2.5 Data Linkage Request Procedure

2.5Data_linkage_request_procedure_v2017.1-2.pdf
2.6 Current Data Collection

2.6Current_Data_Collection_v2017.1-1.pdf
2.7 Guidance_for_internationals_requests

2.7-Guidance_for_internationals_requests_v2018.2.pdf
2.8 Guidance on statistical support for external researchers

2.8Guidance-on-statistical-support-for-external-researchers_v2019.2.pdf
2.9 Guidance on data requests relating to patient ethnicity

2.9-Guidance_on_data_requests_relating_to_patient_ethnicity_v2023.1.pdf
3.1 Security Compliance Policy

3.1Security_compliance_policy_v2017.2.pdf
4.1 Outputs and Publications

4.1Outputs_and_publications_v2017.1.pdf
5.1 Ethics and Privacy Policy

5.1Ethics_and_privacy_policy_v2019.1.pdf
5.2 Complaints Policy

5.2Complaints_policy_v2017.1.pdf
6.1 Freedom of Information Policy

6.1Freedom_of_information_policy_v2017.1.pdf

Data Policies

2.1 Data Collection Policy

2.2 Data Custodianship and Release Policy

2.3 Data Request Procedure

2.4 Quality Assurance Procedure

2.5 Data Linkage Request Procedure

2.6 Current Data Collection

2.7 Guidance_for_internationals_requests

2.8 Guidance on statistical support for external researchers

2.9 Guidance on data requests relating to patient ethnicity

3.1 Security Compliance Policy

4.1 Outputs and Publications

5.1 Ethics and Privacy Policy

5.2 Complaints Policy

6.1 Freedom of Information Policy

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