The Registry is housed within the South Australian Health and Medical Research Institute (SAHMRI) in Adelaide, South Australia. It is an intergral part of the SAHMRI Registry Centre, and overseas six broad domain activities.

  • Australia and New Zealand Dialysis and Transplant Registry – ANZDATA
  • Australia and New Zealand Organ Donation Registry – ANZOD
  • Australia and New Zealand Living Kidney Donation Registry – ANZLKD
  • Australia and New Zealand Eye & Tissue Donation Registry – ANZETD
  • Australia and New Zealand Heart Transplant Pilot Registry – ANZHRT
  • Australia and New Zealand Lung Trasnplant Pilot Registry – ANZLUNG

The Australian and New Zealand Dialysis and Transplant Registry and the Australian and New Zealand Organ Donation registry have a long and successful history. Since the inception of the registries in the early 1960s through the first Annual Report delivered in 1977 to the current extensive evaluations of more than 35,000 kidney replacement therapy (KRT) patients, the registries serve both countries exceptionally well. We lead the way internationally in clinical quality registry practices.

The Registry underwent a comprehensive independent review of all aspects of structure and function, jointly reporting to our funders (Organ and Tissue Donation and Transplantation Authority, Kidney Health Australia, New Zealand Ministry of Health, Australia and New Zealand Society of Nephrology) with the aim of providing a series of recommendations to improve the efficiency, output and impact of of the Registry.

Governance Structure

Funding Bodies

Australian Organ and Tissue Donation and Transplantation Authority (AOTA; under a contract)
NZ Ministry of Health (under contract)
Kidney Health Australia (KHA) (under memorandum of understanding)
Australian and New Zealand Society of Nephrology (ANZSN) (under memorandum of understanding)

Operational Oversight

Operations of the Registry are based at the South Australian Health and Medical Research Institute (SAHMRI) overseen by the Director of Strateigy and policy, Technical Director, Director of Analystics and Reporting, the Registry General Manager and Associate General Manager.

Reporting Lines

The ANZDATA Executive is responsible for activities and outputs of the Registry under the strategic oversight of the ANZDATA Advisory Committee and the ANZOD Consultation Working Group.
The Executive reports to SAHMRI in relation to human resource, facility and infrastructure matters.
The Executive reports directly to AOTA and NZ Ministry of Health in line with specific reporting requirements outlined in funding contracts.
The ANZDATA Advisory Committee reports to KHA and ANZSN through ex officio representative on the Committee and through regular reports to ANZSN clinical practice advisory committee (CPAC).

Operational Bodies

The following roles have been identified in governance structures for operational activities within
the registry:

  • ANZDATA Advisory Committee
  • ANZOD Advisory Committee
  • Executive Committee
  • ANZDATA Working Groups
  • Registry Operation Management Group
  • Contributing Renal Units and Transplant Centres

Roles and Responsibilities

Management and supervision of activities of the Registry is under the direction of the Executive. Registry Management ensures procedural activities of the Registry are in line with ANZDATA’s mission, vision, values and policies. Responsibilities include but are not limited to managing risk, monitoring performance and auditing activities of the Registry, as well as liaising with contributing units, funders and other stakeholders. 
Contributing Renal Units are responsible for providing accurate and complete data to the Registry and ensuring the security, confidentiality, and privacy of information is managed according to legislation and policy.

Document Number: 1.2
Document Name: Organisation and governance statement
Version Number: 2017.1
Effective Date: 21/09/2017